Hepatitis C Survivor

My story as a hepatitis C survivor:

hepatitis c survivor story

I have hep C and have encountered a very difficult problem.

I was always alert the medical persons who will be coming into contact with my blood that I do have chronic hep C.

I did this as usual and also told the technician that they have to use butterfly type needles as my veins either collapse or roll.

At this time if I knew I had access to hep c meds I would have taken them.

When they called him back, to make matters even worse my husband was having labs done as well although they did not know who he was.

After I walked out to go to the administration and make a complaint, my husband went in and noticed the personnel showing each other a tube of blood which turned out to be mine.

My husband overheard one of the employees asking another “is this what hep C looks like?” and they were talking about the “crippled up old woman with no teeth” (meaning me) in front of my husband.

Needless to say this was very unprofessional and embarrassing.

Over time I have been bounced from one bozo to another.

The accident dislocated them and because of this I am prone to lose my balance and can not stay on my feet for very long at a time.

Now as a result of the way I was treated at the lab previously, I can no longer bring myself to go do the periodic bloodwork to monitor my hepatitis C.

The worst part is that I got my hep C in the first place because I mistakenly received the blood of someone else during surgery instead of my own which I had banked ahead of time specifically for my own transfusion.

The sad part is there is nothing I can do about any of this other than give up and resign myself to the fact I will never get better because they have decided I am not worth the time it takes to really hear me, and they only pay attention to the fibro, hep c, and rheumatoid arthritis.

Never mind that I was a passenger in a serious auto accident. Even though I may have chronic hep C I am still a HUMAN BEING.

And I want to cure my illness. Because it was too expensive, I was told a drug had come out but insurance would not cover it. I waited and waited almost two years passed.

One of my friends from the support group was told about (from her doctor, he was one of he good ones) an American non profit that provides hep c treatment for a $1000.

That was it, I got on board. Before I got the treatment I needed to get my hep c genotype done, otherwise they would have no idea what hepc treatment would be required.

The three main ones are Harvoni, Sovaldi and Epclusa.

At this time if I knew I had access to hep c meds I would have taken them.

The sad part is there is nothing I can do about any of this other than give up and resign myself to the fact I will never get better because they have decided I am not worth the time it takes to really hear me, and they only pay attention to the fibro, hep c, and rheumatoid arthritis.

Even though I may have chronic hep C I am still a HUMAN BEING.

One of my friends from the support group was told about (from her doctor, he was one of he good ones) an American non profit that provides hep c treatment for a $1000.

Before I got the treatment I needed to get my hep c genotype done, otherwise they would have no idea what hepc treatment would be required.

Luckily, I found a good fried to loan me the money to get my genotype test done.

A few days go by, I find out I have genotype 1.

The treatment I needed was generic Harvoni, which worked out just fine for me.

5 months later, I take a hep C test, it comes normal, with no viral load detected.

I really have to thank this doctor and this company for getting me these life saving meds.


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